Off the Spectrum, Gina Rippon
Off the Spectrum, Gina Rippon
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Off the Spectrum
Why the Science of Autism Has Failed Women and Girls

Author: Gina Rippon

Narrator: Catherine Bailey, Gina Rippon

Unabridged: 9 hr 3 min

Format: Digital Audiobook Download

Publisher: Seal Press

Published: 04/01/2025


Synopsis

A cognitive neuroscientist reveals how autistic women have been overlooked by biased research—and makes a passionate case for their inclusion

Who comes to mind when you think about an autistic person? It might be yourself, a relative or friend, a public figure, a fictional character, or a stereotyped image. Regardless, for most of us, it’s likely to be someone male. Autistic women are systematically underdiagnosed, under-researched, and underserved by medical and social systems—to devastating effects.

In Off the Spectrum, cognitive neuroscientist Gina Rippon sheds light on how old ideas about autism leave women behind and how the scientific community must catch up. Generations of researchers, convinced autism was a male problem, simply didn’t bother looking for it in women, creating a snowball effect of biased research. To correct this “male spotlight” problem, Rippon outlines how autism presents differently in girls and women—like their tendency to camouflage their autistic traits, or how their intense interests may take a form considered to be more socially acceptable. When autism research studies don’t recruit female participants, Rippon argues, it’s not only autistic women who are failed; it’s the entire scientific community. Correcting a major scientific bias, Off the Spectrum provides a much-needed exploration of autism in women to parents, clinicians, and autistic women themselves.

Reviews

Goodreads review by emily on May 10, 2025

female-centred book on autism by an actual neurobiologist i manifested this, excellently written and i will be getting my hands on a physical copy. the more i learn about female history in regards to autism the angrier i get.......more

Goodreads review by Enea on March 22, 2025

Vote: 3.4 Disclaimer: is not a full 4 stars only because by background I am a neuroscientist so I found the neuroscience part a bit too simple for me personally (which on the other hand is also one of the strengths of this book though). I quite enjoyed the book. First of all, I was absolutely not awar......more

Goodreads review by Louise on April 09, 2025

I requested The Lost Girls of Autism from my library because I’m in my third year of waiting for a formal diagnosis of autism. As one of the Lost Girls, it shed so much light on my experiences from early childhood up until now. I recognised myself clearly in the first-person accounts of being female......more

Goodreads review by Shannon on April 08, 2025

Written by a late in life diagnosed autistic woman, this is part memoir, part sociological study into the gender differences in autism diagnoses. I really appreciated how well the author relied on research studies and their particular attention to gender nonconforming autistic people. Great on audio......more

Goodreads review by Jo on May 02, 2025

This book was everything I hoped it would be. A strong look into the failings past just "not testing women", how the criteria is based on men, how autism often presents in girls, how socialisation impacts the brain and why the teenage years are so horrific for us autistic girls.......more


Quotes

“This timely and engaging book illuminates the history of overlooked girls and women in autism research, unpacking cutting-edge genetic and neuroscience findings alongside insights from autistic women and girls themselves. A vital call to action, it charts a bold path forward to revolutionize research, understanding, support, and outcomes for this unique population.”—Felicity Sedgewick, PhD, author of Autism and Masking

Off the Spectrum shines a much-needed spotlight on the critical issue of autistic females being overlooked and misdiagnosed for far too long. This book is a powerful, well-researched exploration of how both science and the voices of lived experience must come together to bridge gaps in understanding. By weaving research with authentic perspectives from the community, Off the Spectrum offers a pathway toward ensuring that future generations of autistic women are recognized and supported—not left behind. It is an essential read for anyone who cares about fostering true inclusivity and understanding.”
 —Maureen Dunne PhD, author of The Neurodiversity Edge