Rebel Health, Susannah Fox
Rebel Health, Susannah Fox
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Rebel Health
A Field Guide to the Patient-Led Revolution in Medical Care

Author: Susannah Fox

Narrator: Kim Niemi

Unabridged: 5 hr 49 min

Format: Digital Audiobook Download

Published: 04/09/2024

Synopsis

Anyone who has fallen off the conveyer belt of mainstream health care and into the shadowy corners of illness knows what a dark place it is to land. Where is the infrastructure, the information, the guidance? What should you do next? In Rebel Health, Susannah Fox draws on twenty years of tracking the expert networks of patients, survivors, and caregivers who have come of age between the cracks of the health care system to offer a way forward. Covering everything from diabetes to ALS to Moebius Syndrome to chronic disease management, Fox taps into the wisdom of these individuals, learns their ways, and fuels the rebel alliance that is building up our collective capacity for better health.

Rebel Health shows how the next wave of health innovation will come from the front lines of this patient-led revolution. Fox identifies and describes four archetypes of this revolution: seekers, networkers, solvers, and champions. Each chapter includes tips, such as picking a proxy to help you navigate the relevant online communities, or learning how to pitch new ideas to investors and partners or new treatments to the FDA.

Proactive, optimistic, and innovative, Rebel Health is a guiding light for anyone who wishes to join the health rebel alliance and become the hero of their own story.

About Susannah Fox

Susannah Fox helps people navigate health and technology. She served as chief technology officer for the US Department of Health and Human Services, where she led an open data and innovation lab. Prior to that, she was the entrepreneur-in-residence at the Robert Wood Johnson Foundation and directed the health portfolio at the Pew Research Center's Internet Project.

Reviews

Goodreads review by Jennie on April 15, 2024

Such an excellent and much needed read for all who receive & provide healthcare. An inspiring read with clear action steps for the reader to also be a rebel!......more

Goodreads review by Ben on May 16, 2024

Susannah Fox is one of those people whose drive to do something so meaningful and so consequential, always has her on your radar. You want to know what she’s up to as it’s probably field leading, going to make an impact, and inspiring all at the same time. Her book, Rebel Health has all the characte......more

Goodreads review by Jl on February 11, 2024

Susannah Fox has written the definitive "field guide" for people facing serious medical issues, and an introduction for anyone in the medical system to learn how to tap into the "rebel health alliance." Our natural instinct when we or a loved one is sick is to find out everything that others like us......more

Goodreads review by Susannah on February 24, 2024

Note: This review is written by Susannah M. Fox for her friend, Susannah R. Fox, we just happen to share the same name and commitment to health care! Health care is ripe for transformation" Susannah Fox writes in her new book #RebelHealth. This could not be more true. The stories she weaves around the......more

Goodreads review by Ernst on February 15, 2024

Rebel Health by Susannah Fox is a field guide for the patient/citizen-led revolution in healthcare. With a historical perspective and many recent examples Susannah describes how unmet needs of patients (Seekers) find solutions by identifying people with similar needs and thus become Networkers to fo......more

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